• robyndeverett

Let's Talk About Endometriosis

Updated: Sep 23


Endometriosis (en-doh-me-tree-o-sis) affects more than one in 10 women, and an estimated 200 million women and teens worldwide; but women can go years without being diagnosed.

Endometriosis is a condition where the tissue that lines the uterus begins to grow outside of it with no known cause.

There is NO cure for endometriosis, but there are several treatment and management options. The best treatment depends on your individual situation. Talk to your doctor or a licensed healthcare professional to find out more information about endometriosis.



Yesterday Amy Schumer shared that she underwent surgery to remove her uterus and appendix due to endometriosis. She wrote in her Instagram post "if you have really painful periods you may have #endometriosis ". If more women like Amy continue to share their stories, we can make all those suffering with endometriosis know that they are not alone, and their pain is not in their head!


“We need to move away from normalizing uterine pain. Periods shouldn’t be debilitating or cause lost time from work or school—it is not natural to have severe pelvic pain,” said Dr. DeLuca (Samantha DeLuca, D.O., an OB/GYN at Inspira Medical Group Obstetrics and Gynecology). “The best thing we can do as providers is to take complaints seriously. We need to pay attention to the hallmark signs: painful periods, painful sex, chronic pelvic pain, GI symptoms and painful bowel movements or urination. These are signs that a patient should be referred immediately.”



Dr. Chrysoula Zacharopoulou, Founder of Info-Endometriose, wrote the following: “Menstruation is an experience shared by women across the world yet is viewed differently depending on the culture and community. But what is one common theme spanning most cultures? The stigma and embarrassment around discussing a woman’s “time of the month.” Contrary to popular perception, menstrual health is not just a “women’s issue” but an issue of gender equality and social justice. While progress has been made to advance gender equality and to improve health outcomes for girls and women, there are still many “invisible” health issues with both emotional and economic implications for millions. And the silence surrounding endometriosis is the perfect example.”



“Despite its significant burden on women, their families, and society as a whole, endometriosis is underfunded and under-researched, greatly limiting understanding of the disease and slowing much-needed innovation in diagnostic and treatment options,” said Dr. Rebecca Nebel, director of scientific programs at the Society for Women’s Health Research. With symptoms like infertility, chronic pelvic pain, painful periods, painful sex, back pain, and intestinal problems, endometriosis can negatively affect all aspects of a woman’s daily life, including her physical and emotional well-being and productivity. The disease is also costly, with estimated health care expenditures for endometriosis at $69.4 billion per year in the United States. (Check out “Identifying Barriers to Care for Women With Endometriosis” - Society for Women’s Health Research - for more information)



When I was trying to find educational content on IG, it wasn’t as simple as I thought it would be. But I found the images included in this blog from:

-Real talk from Endo Warriors🎗

-Society for Women’s Health Research

@the_endo_space

@nicolemjardim

@endohealthhub

@invisiblendo

@endo_graphics

@livingwithendometriosis

@endo_graphics

@theendospectrum

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